We spent last Saturday at the hospital and did our “room in” with Carson to show everyone that we are capable of taking care of him. We got to the hospital at 10:30 am and stayed until 7:00 pm. We were put in a private family room and given some times for when we needed to do our “cares” for Carson. We found that he needs to be suctioned often when he is awake, but not much when he is sleeping. He also let us know that he doesn’t like to have his diaper changed. Everything went really well and Heather and I feel capable of taking care of Carson by ourselves. We’ll just see how things go when we get him home. It will be a big adjustment for us, but it will be very good for Carson to be at home.
We’re gearing up for bring Carson home sometime this week. We’ve run into a few snags with paperwork getting from the hospital to our insurance so it’s delayed his departure. We were thinking Wednesday or Thursday, but our insurance told us that even though they can approve the night nursing by Wednesday, that it will take some time for the nursing company to get that info and get nurses lined up for Carson. So we’re not totally sure what day that will be now; hopefully still this week or this weekend.
Carson’s room is starting more and more to look like a hospital. On Saturday the home care company brought us his oxygen saturation and heart monitor, his feeding pump, and his suction machine. We’ve also got an IV stand and will be getting a humidifier machine and oxygen tanks. UPS delivered three large boxes of medical supplies full of stuff to take care of Carson’s trach. We’ll also be getting supplies for his g-tube and other odds and ends that we requested from the home care company. It’s all a little overwhelming, but we’re hanging in there.
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Wow! You guys are great. Hope it's soon
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