Sunday, April 4, 2010

First Update

For those of you who are unaware of what is going on, here is a quick summary!

Thursday morning, Heather and Steve dropped Avery off at Tory's house while they went to the U (University hospital), where they were to meet with the surgeons and learn more about what the plans were for Carson's arrival and his surgery following his birth. However, Heather was unexpectedly admitted because she was 2cm dilated and 80% effaced. They put her on magnesium to stop her contractions. After some complications with the magnesium, she has been taken off of it today. Tomorrow the doctors will discuss what needs to happen. They may need to drain some of the amniotic fluid. They are hoping to keep Carson in Heather for at least 2 more weeks. Heather will be in the hospital during this time on strict bed rest.

They have also been told that Carson may have Carpenter's Syndrome. Carpenter's Syndrome is an extremely rare genetic disorder caused by a mutation on the 6th chromosome. There is approximately only 300 known cases in the US. Only one in one million babies have this syndrome. Roughly half of the babies born with Carpenter Syndrome have some type of heart defect, and seventy five percent of individuals with this disease will experience some degree of development delay due to mild mental retardation. They will know more information as to if he does have this and how severe once he is born.

I will update you as I talk to Steve and Heather!! :) Thanks for all your prayers, encouragement, and concerns for the Sanders! They truly appreciate it!

1 comment:

  1. Thank you for doing this blog! Perfect idea to keep us all posted without overwhelming Steve and Heather. We sure are praying... and care so much.
    Jill Semau